Patient, Wartepatient und Organkrank

“Organ disease” and Wartepatient

Of course, when you see a doctor, a person is a patient who has to wait. But the dimension that an organ-sick person has to suffer can be defined here in Germany as a “waiting patient“. It can affect anyone, even with a different entry/exit of the medical history. Only one of these possible tales of woe is mentioned here (the following is taken from a narrative point of view!) :

Patient, Wartepatient und Organkrank

“Organ disease” and Wartepatient

Of course, when you see a doctor, a person is a patient who has to wait. But the dimension that an organ-sick person has to suffer can be defined here in Germany as a “waiting patient“. It can affect anyone, even with a different entry/exit of the medical history. Only one of these possible stories of suffering is mentioned here:

Patient, Wartepatient und Organkrank

“Organ disease” and Wartepatient

Of course, when you see a doctor, a person is a patient who has to wait. But the dimension that an organ-sick person has to suffer can be defined here in Germany as a “waiting patient“. It can affect anyone, even with a different entry/exit of the medical history. Only one of these possible stories of suffering is mentioned here:

One morning, waking up with a ponderously tired mine, you look in the mirror: “My face is not as it always is, is it maybe the rings around the eyes?”. “Why don’t I feel so good? Edema perhaps, maybe I didn’t sleep well yesterday? Was it Alcohol? No, no and again no! Hm?”.

Wartepatıent muede
sekunden 00:07
Wartepatient Stop
sekunden 00:06

After a few days: “Otherwise, the vital situation of my body sometimes changes within the week, of course. But it has not improved, not after several two weeks. But now I consult my family doctor, there is really something wrong!”.

After 2.5 hours of waiting for the consultation, the family doctor requests a blood count after he has listened to the symptoms. After the immediate blood draw, you should introduce yourself here again two days later: “Please come back to the consultation hour!”.

When talking to the doctor, he is quite sure, “It is a …”, but he is only allowed to write “Suspicion of … or the number for the international coding for diseases” on his computer and refer or refer me to his colleagues, “… he is competent in this area!”, Sure. “Please take your pack of documents from your previous medical history with you, thank you!”. So nice and so good, I think further: “We are still living in the 1950s, of course, or the beginning of the 1920s, and not the 2020s. Industrialization (and not digitization) is still ahead of us, yes!?. “

Wartepatient Stop
sekunden 00:05
Wartepatient at doctor
sekunden 00:04

“Well, now I come to this (after very quick appointments, of course, is urgent!) Specialty of medicine. These are either in the local practice or in the next larger city with a university clinic that covers this area with … Latin terms ending in logic – it will probably be found there. “

When I get there, I have another blood sample, this time with dozens of tubes. “You really ask yourself what kind of expertise and expertise do doctors have these days, or do they have a deep sleep?”

“That’s not nearly as bad as what’s to come.”

organ disease at doctor
sekunden 00:03
organ disease at doctor
sekunden 00:02

Depending on how fast the progression of your insufficiency is, the blood values will be interpreted by your colleagues. Yes so and so. Then it is touched in detail and more precisely on the meat.

Although nowadays all organ diseases can be determined almost 100% by means of blood value constellations, score tables, XYZ factors, at the molecular level with protein markers, “… we need further investigations!” one or the other specialist colleague will advise you with a frightening look.

organ disease at doctor
sekunden 00:01
Stop, stay here
sekunden 00:00

If you are lucky, either only the x-ray (CT, MRI, PET or X-ray in radiology) will be carried out, which is of course the gentle way, or these will go straight to the marrow: tissue removal, biopsy and / or spinal cord fluid removal, etc. If you are unlucky you will then be consulted immediately in the operative clinic.

One morning, waking up with a ponderously tired mine, you look in the mirror: “My face is not as it always is, is it maybe the rings around the eyes?”. “Why don’t I feel so good? Edema perhaps, maybe I didn’t sleep well yesterday? Was it Alcohol? No, no and again no! Hm?”.

Wartepatıent muede
sekunden 00:07

After a few days: “Otherwise, the vital situation of my body sometimes changes within the week, of course. But it has not improved, not after several two weeks. But now I consult my family doctor, there is really something wrong!”.

After 2.5 hours of waiting for the consultation, the family doctor requests a blood count after he has listened to the symptoms. After the immediate blood draw, you should introduce yourself here again two days later: “Please come back to the consultation hour!”.

Wartepatient vor Doctor
sekunden 00:06

When talking to the doctor, he is quite sure, “It is a …”, but he is only allowed to write “Suspicion of … or the number for the international coding for diseases” on his computer and refer or refer me to his colleagues, “… he is competent in this area!”, Sure. “Please take your pack of documents from your previous medical history with you, thank you!”. So nice and so good, I think further: “We are still living in the 1950s, of course, or the beginning of the 1920s, and not the 2020s. Industrialization (and not digitization) is still ahead of us, yes!?. “

Wartepatient Stop
sekunden 00:05

“Well, now I come to this (after very quick appointments, of course, is urgent!) Specialty of medicine. These are either in the local practice or in the next larger city with a university clinic that covers this area with … Latin terms ending in logic – it will probably be found there. “

Wartepatient at doctor
sekunden 00:04

When I get there, I have another blood sample, this time with dozens of tubes. “You really ask yourself what kind of expertise and expertise do doctors have these days, or do they have a deep sleep?”

“That’s not nearly as bad as what’s to come.”

organ disease at doctor
sekunden 00:03

Depending on how fast the progression of your insufficiency is, the blood values will be interpreted by your colleagues. Yes so and so. Then it is touched in detail and more precisely on the meat.

organ disease at doctor
sekunden 00:02

Although nowadays all organ diseases can be determined almost 100% by means of blood value constellations, score tables, XYZ factors, at the molecular level with protein markers, “… we need further investigations!” one or the other specialist colleague will advise you with a frightening look.

organ disease at doctor
sekunden 00:01

If you are lucky, either only the x-ray (CT, MRI, PET or X-ray in radiology) will be carried out, which is of course the gentle way, or these will go straight to the marrow: tissue removal, biopsy and / or spinal cord fluid removal, etc. If you are unlucky you will then be consulted immediately in the operative clinic.

Stop, stay here
sekunden 00:00

After a pathological examination and assessment of the tissue samples or the help and confirmation of the “third” specialist colleague, the “suspicion” has turned into a “diagnosis” (finally, phew, that was a difficult birth!) And you are finally “organ sick”.

Depending on which organ is affected, you will be included in a “program” as quickly as possible and placed on a list with the other “waiting patients”. Now we have to wait and see. Waiting patient is a real existing structure, why is it not defined? “Patient is the term for patience or waiting, why are you still making us a waiting patient?”

Waiting is another thing: If you are lucky (in this case, luck is “you are really bad”), you will get an “HU” for “high urgent” at Eurotransplant in the Netherlands for your waiting list entry .

The waiting time for a donor organ, according to the DSO Deutsche Stiftung Organtransplantation, is on average 9-11 years in Germany, namely for a kidney transplant.

Waiting patient, dependent on a heart transplant, has to struggle with a long and nerve-wracking waiting time for a donor organ. This dies if it is not transplanted in time. There are artificial hearts which, to put it mildly, enable heart disease people to survive for up to a year. But many patients die before they have the saving, possibly life-extending, donor heart transplanted due to a lack of donor organs here in Germany.

Here you can listen to an interview about a heart transplant in a podcast on Spotify (german language):

Interview with Jürgen Boie: From a dream vacation in the Caribbean to a heart transplant

Waiting patient who is dependent on a donor organ also has to struggle with a very long waiting time. This dies even if it is not transplanted in time. As a rule, those patients who are dependent on a lung transplant have a life expectancy of less than 2-3 years and are extremely limited in their resilience and quality of life. These must then be classified as HU (high urgent) so that they may receive the life-extending transplant. But here in Germany, the number of organ donations has been pretty desolate in recent years.

support group “COPD/Lungenemphysem”

Waiting patient, dependent on a liver transplant, also has a very short chance of survival. Since the waiting time for a donor organ is very long, it will probably succumb to the disease, because there is no replacement therapy for survival except liver transplantation. The liver is still the most complicated organ, so a replacement therapy for it has still not been invented.

Support group “Leberzirrhose/-fibrose”

Waiting patient, dependent on a kidney transplant, has a good chance of survival while waiting for the possibly life-prolonging donor organ. With kidney replacement therapy (dialysis), kidney patients have a therapeutic option that extends their life (record is 50 years old), but the accompanying illnesses literally make life difficult and sometimes unbearable for them. At the moment the waiting time for a kidney donation in Germany is 9-11 years on average.

Support Group: “Menschen auf der Warteliste bei Eurotransplant”

Waiting patient dependent on a pancreas, large / small intestine or cornea (tissue) donation has a relatively good chance of survival while waiting for a donor or tissue organ that improves quality of life. But only if, before irreversible damage to the organ occurs, treatment can be given early and an organ donation can be avoided, otherwise it can be too late.